Patient registry for haemochromatosis launches
Australia is the first country in the world to set up a patient database for the genetic condition which will be used for research purposes
A world-first patient registry for people with haemochromatosis will be launched in Australia.
The Haemochromatosis National Patient Registry (HNPR) will be a centralised cloud-based database for research into the role of iron in chronic health conditions including liver disease, arthritis, diabetes and cardiac conditions.
It will also be vital for future research into the impact of iron on the brain.
The registry, based at QIMR Berghofer Medical Research Institute in Brisbane, will build on a legacy database of 4000 patients established by esteemed hepatologist Professor Lawrie Powell in his 40 years of clinical practice.
