Patient registry for haemochromatosis launches
Australia is the first country in the world to set up a patient database for the genetic condition which will be used for research purposes
A world-first patient registry for people with haemochromatosis will be launched in Australia.
The Haemochromatosis National Patient Registry (HNPR) will be a centralised cloud-based database for research into the role of iron in chronic health conditions including liver disease, arthritis, diabetes and cardiac conditions.